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Aimee Aubeeluck

Associate Professor, Faculty of Medicine & Health Sciences

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Biography

Aimee graduated in 2000 with a first class degree in psychology. She then completed a MSc in Health Psychology and a PhD in Quality of Life in Huntington's Disease. She became a Chartered Health Psychologist in 2006 and a Registered Practitioner Psychologist in 2010. She is currently an Associate Professor in Health Psychology and Director of Admissions in the School of Health Sciences. She is a Registration Assessor for the Health Professionals Council, an Associate Fellow of the British Psychological Society, a Fellow of the Higher Education Academy and Senior Fellow of the Institute of Mental Health.

Professional Affiliations:

Registered Practitioner Psychologist (Health) - Health Professionals Council

Chartered Psychologist - British Psychological Society

Senior Fellow - Institute of Mental Health

Fellow - Health Education Academy

Professional Member - Huntington's Disease Association

Professional Member - European Huntington's Disease Network

Expertise Summary

Aimee's research interests predominantly focus on the impact of Huntington's Disease (HD) on the quality of life (QoL) of spousal carer's. During her PhD, she developed a HD specific QoL scale (HDQoL-C) for family carers of HD patients (Aubeeluck & Buchanan, 2006, 2007). The objective of this scale is to quantify the caregiving experience and set support in place via a self-reported QoL measurement. Other research interests include Teaching Innovations, student advocacy and support and women's health.

Recent Research Supervisees

Eleanor Wilson - Experience of living with Huntington's Disease

Deborah Oliveira - Quality of Life in Dementia

Gogem Topcu - Quality of life in Multiple Sclerosis

Issa Almansour - Palliative Care in Jordan

Samantha Kelly - Desert in compassion

Lee Smith - Religion and mental health

Teaching Summary

Health Psychology Quality of LIfe Research Methods Psychology of Ageing Neurological Diseases Family caregiving

Research Summary

  • Huntington's Disease
  • Quality of life (QoL)
  • Ageing and dementia
  • Family caregiving
  • Innovations in Teaching and Learning
  • Student Advocacy and Support

Selected Publications

Aimee's research interests focus on quality of life for family caregivers of Huntington's Disease Patients. During her PhD, she developed the Huntington's Disease Quality of Life Battery for carers which is being use across Europe and the USA by family caregivers, clinicians and researchers to identify ways of supporting family carers in their caregiving role.

http://www.nottingham.ac.uk/nmpresearch/hdqol-c

What is the HDQoL-C ©?

The HDQoL-C is a Huntington's Disease Specific, multi- dimensional and validated tool for measuring subjective quality of life in family caregivers of persons with Huntington's Disease.

The HDQoL-C is a 34 item scale that incorporates measures of the individual's physical health, psychological state, level of independence. Social relationships and personal beliefs that was developed with family carers of persons with Huntington's Disease

Who would complete the HDQoL-C©?

The HDQol-C© was initially developed for use with Spousal caregivers and has been adapted for use with all family caregivers of persons with Huntington's Disease.

The HDQoL-C© has been translated into a number of languages and demonstrates multi-lingual and multi-cultural consistency.

The HDQoL-C© is also available in a short form version.

Why use the HDQoL-C©?

The HDQoL-C© can be used if a quality of life measure is required for research, clinical or personal purposes.

Using the HDQoL-C© as an intervention for family carers

The HDQoL-C© can be used by health professionals to understand the impact that living with Huntington's Disease has on the family.

By asking a family member to complete the questionnaire, their experiences can be quantified at baseline giving the opportunity for comparison within the individual's experiences at each completion.

Using the HDQoL-C© can guide the clinician in terms of where resources may be best placed for the family in order to improve quality of life.

The HDQoL-C© is used in ongoing Euro-HDB studies measuring the burden of Huntington's Disease in several European countries and in the USA.

http://www.nottingham.ac.uk/nmpresearch/hdqol-c

School of Health Sciences

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