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Aimee Aubeeluck

Course Director: Graduate Entry Nursing / Programme Leader / Lecturer, Faculty of Medicine & Health Sciences

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Biography

Aimee graduated in 2000 with a first class degree in psychology. She then completed a MSc in Health Psychology and a PhD in Quality of Life in Huntington's Disease. She became a Chartered Health Psychologist in 2006 and a Registered Practitioner Psychologist in 2010. She has worked as an academic and applied psychology researcher for a number of years in the fields of Psychology and Nursing. She is currently a Lecturer in Health Psychology and Course Leader for Graduate Entry Nursing at the School of Nursing, Midwifery and Physiotherapy and is a Registration Assessor for the Health Professionals Council, a fellow of the Higher Education Academy and Senior Fellow of the Institute of Mental Health.

Professional Affiliations:

Registered Practitioner Psychologist - Health Professionals Council

Chartered Psychologist - British Psychological Society

Senior Fellow - Institute of Mental Health

Fellow - Health Education Academy

Professional Member - Huntington's Disease Association

Professional Member - European Huntington's Disease Network

Expertise Summary

Aimee's research interests predominantly focus on the impact of Huntington's Disease (HD) on the quality of life (QoL) of spousal carer's. During her PhD, she developed a HD specific QoL scale (HDQoL-C) for family carers of HD patients (Aubeeluck & Buchanan, 2006, 2007). The objective of this scale is to quantify the caregiving experience and set support in place via a self-reported QoL measurement. Other research interests include women's health, menstrual cycle research and student advocacy and support

Recent Research Supervisees

Eleanor Wilson: Understanding the impact of living with Huntington's Disease from multiple perspectives; people with HD, their family members and the health and social care professionals involved in their care.

Issa Alman: Challenges for Jordanian Nurses when moving from the recovery trajectory to an EOL trajectory in intensive care settings.

Karwan M-Amen: Using Health promotion interventions to improve Quality of Life among community dwelling older persons in Erbil.

Teaching Summary

Course Leader Postgraduate Diploma in Nursing Studies: Graduate Entry Nursing Module leader: Foundations to Health and Illness. Psychology of Ageing Family caregiving Health… read more

Research Summary

  • Huntington's Disease
  • Quality of life (QoL)
  • Ageing and dementia
  • Family caregiving
  • Women's health
  • Student Advocacy and Support

Selected Publications

Aimee's research interests focus on quality of life for family caregivers of Huntington's Disease Patients. During her PhD, she developed the Huntington's Disease Quality of Life Battery for carers which is being use across Europe and the USA by family caregivers, clinicians and researchers to identify ways of supporting family carers in their caregiving role.

http://www.nottingham.ac.uk/nmpresearch/hdqol-c

What is the HDQoL-C ©?

The HDQoL-C is a Huntington's Disease Specific, multi- dimensional and validated tool for measuring subjective quality of life in family caregivers of persons with Huntington's Disease.

The HDQoL-C is a 34 item scale that incorporates measures of the individual's physical health, psychological state, level of independence. Social relationships and personal beliefs that was developed with family carers of persons with Huntington's Disease

Who would complete the HDQoL-C©?

The HDQol-C© was initially developed for use with Spousal caregivers and has been adapted for use with all family caregivers of persons with Huntington's Disease.

The HDQoL-C© has been translated into a number of languages and demonstrates multi-lingual and multi-cultural consistency.

The HDQoL-C© is also available in a short form version.

Why use the HDQoL-C©?

The HDQoL-C© can be used if a quality of life measure is required for research, clinical or personal purposes.

Using the HDQoL-C© as an intervention for family carers

The HDQoL-C© can be used by health professionals to understand the impact that living with Huntington's Disease has on the family.

By asking a family member to complete the questionnaire, their experiences can be quantified at baseline giving the opportunity for comparison within the individual's experiences at each completion.

Using the HDQoL-C© can guide the clinician in terms of where resources may be best placed for the family in order to improve quality of life.

The HDQoL-C© is used in ongoing Euro-HDB studies measuring the burden of Huntington's Disease in several European countries and in the USA.

http://www.nottingham.ac.uk/nmpresearch/hdqol-c

  • Course Leader Postgraduate Diploma in Nursing Studies: Graduate Entry Nursing
  • Module leader: Foundations to Health and Illness.
  • Psychology of Ageing
  • Family caregiving
  • Health Psychology
  • Research methods
  • Health promotion
  • AUBEELUCK AV, BUCHANAN H and STUPPLE EJN, 2012. 'All The Burden On All The Carers': Exploring Quality Of Life With Family Caregivers Of Huntington's Disease Patients. Quality Of Life Research : An International Journal Of Quality Of Life Aspects Of Treatment, Care And Rehabilitation. (In Press.)
  • MCGARRY J and AUBEELUCK A, 2012. A Different Drum: a UK experience of developing a research based educational resource to facilitate ‘understanding’ in complex care encounters Nursing Science Quarterly. (In Press.)
  • WILSON E, SEYMOUR J and AUBEELUCK A, 2011. Perspectives Of Staff Providing Care At The End Of Life For People With Progressive Long-Term Neurological Conditions. Palliative & Supportive Care. 9(4), 377-85
  • MCGARRY J, AUBEELUCK A, JAMES V and HINSLIFF-SMITH K, 2011. Maximising Graduate Status In Pre-Registration Nursing Programmes: Utilising Problem Based Learning. Nurse Education In Practice. 11(6), 342-4
  • AUBEELUCK, A, WILSON, E and STUPPLE, E.J.N., 2011. Obtaining Quality of Life for Huntington’s Disease Patients and their families. British Journal of Neuroscience Nursing. 6(1), 24-28
  • WILSON, E, POLLOCK, K and AUBEELUCK, A, 2010. Gaining and maintaining consent when capacity can be an issue: a research study with people with Huntington’s Disease Clinical Ethics. 5(3), 142-147
  • WILSON, E, AUBEELUCK, A and POLLOCK, K., 2010. Secrecy and Silence in Huntington's Disease In: Quality Research in Mental Health (3).
  • MCGARRY J AUBEELUCK A SIMPSON C WILLIAMS G, 2009. Student nurses experiences of working with older people: dignity and values Nursing Older People. 21(7), 16-22
  • CRAWFORD, PAUL, AUBEELUCK, AIMEE, BROWN, BRIAN, COTREL-GIBBONS, LIZ, POROCK, DAVINA and BAKER, CHARLEY, 2009. An evaluation of a DVD trigger based assessment of communication and care delivery skills. Nurse education today. 29(4), 456-63
  • AUBEELUCK, A., 2009. A holistic and multidisciplinary approach to Huntington's disease management. VOL 16(NUMB 7), 360-361
  • CRAWFORD, P., AUBEELUCK, A., BROWN, B., COTREL-GIBBONS, L., POROCK, D. and BAKER, C., 2009. An evaluation of a DVD trigger based assessment of communication and care delivery skills. VOL 29(NUMBER 4), 456-463
  • CRAWFORD, P., AUBEELUCK, A. and COTREL-GIBBONS, L., 2008. Evaluation of a DVD-based assessment of communication and care delivery skills In: Developing Great Nurses: Innovations in Pre-Registration Education Conference.
  • AUBEELUCK, A and WILSON, E, 2008. Huntington's disease. Part 1: essential background and management British Journal of Nursing. 17(3), 146-151
  • AUBEELUCK, A. and MOSKOWITZ, C.B., 2008. Huntington's disease. Part 3: family aspects of HD. VOL 17(NUMB 5), 328-331
  • AUBEELUCK, A and BREWER, H, 2008. Huntington's disease. Part 2: treatment and management issues in juvenile HD. British Journal of Nursing. 17(4), 260-263
  • AUBEELUCK, A. and BUCHANAN, H., 2007. The Huntington’s Disease quality of life battery for carers: reliability and validity Clinical Genetics. 71(5), 434-445
  • COULSON, N.S, BUCHANAN, H and AUBEELUCK, A., 2007. Social support in cyberspace: A content analysis of communication within a Huntington’s disease online support group. Patient, Education and Counseling. 68(2), 173-178 (In Press.)
  • AUBEELUCK, A. and BUCHANAN, H., 2006. A measure to assess the impact of Huntington's disease on the quality of life of spousal carers British Journal of Neuroscience Nursing. 2(2), 88-95
  • MILLS,J. and AUBEELUCK,A., 2006. Nurses' experiences of caring for their own family members. British Journal of Nursing. 15(3), 160-5
  • COULSON, N.S., BUCHANAN, H. and AUBEELUCK, A, 2006. Coping with the challenges of Huntington’s Disease: exploring the provision of social support in cyberspace In: 4th International Conference on Cyberspace. (In Press.)
  • AUBEELUCK A and BUCHANAN, H., 2006. Developing a scale to measure the impact of Huntington’s Disease on the quality of life of spousal carers. British Journal of Neuroscience Nursing. April 2(2), 126-33
  • AUBEELUCK, A. BUCHANAN, H. (2006), 2006. Capturing the Huntington's Disease spousal carer experience: A Preliminary investigation using he photovoice method Dementia: The international Journal of Social Research and Practice. 5(1), 95-116
  • MILLS, J. AUBEELUCK, A. (2006), 2006. The experience of nurses caring for a family member with a life-threatening illness: An interperative phenomenological analysis British Journal of Nursing. 13(3), 279-282 (In Press.)
  • AUBEELUCK, A., 2005. Caring for the carers: quality of life in Huntington's disease British Journal of Nursing. 14(8), 452-454
  • COULSON,N.S., BUCHANAN,H., AUBEELUCK,A. and ROONEY,E., 2005. Exploring the social support provided by members of a HuntingtonÃs Disease computer-mediated support group In: British Psychological Society Quinquennial Conference.
  • AUBEELUCK, A., 2005. The Huntington's Disease Quality of Life Battery for Carers (HDQOL-C) Health Psychology Update. VOL 14(ISSU 1), 2-4
  • COULSON, N.S., AUBEELUCK, A. and BUCHANAN, H., 2005. Coping with the challenges of Huntington’s disease: exploring the process of cyber-support In: World Congress on Huntington's disease. (In Press.)
  • COULSON,N.S., AUBEELUCK,A., BUCHANAN,H. and ROONEY,H., 2004. Participation in an online Huntington's Disease support network: who participates and what do they talk about? In: British Psychological Society Division of Health Psychology.
  • COULSON,N.S., AUBEELUCK,A., BUCHANAN,H., SEMPER,H. and ROONEY,E., 2004. Exploring the provision of social support within a computer-mediated Huntington's Disease support network In: European Health Psychology Society.
  • AUBEELUCK, A., 2003. Spousal caregiving in Huntington's Disease: An issue for health psychology Health Psychology Update. VOL 12(ISSU 4), 20-27
  • AUBEELUCK, A and MAGUIRE, M. (2002), 2002. The Menstrual Joy Questionnaire items alone can positively prime reporting of menstrual attitudes and symptoms. Psychology of Women Quarterly. 26, 160-165 (In Press.)
  • O TOOLE, S., AUBEELUCK, A., COZENS, B. and CLINE, T., 2001. Development of Reading Proficiency in English by Bilingual Children and Their Monolingual Peers Psychological Reports. VOL 89(PART 2), 279-282

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