Eleanor Wilson

Contact

• workRoom B58 The Sue Ryder Care Centre for Palliative and End of Life Studies
  Queen's Medical Centre
  Nottingham
  NG7 2UH
  UK
• work0115 82 31201
• fax0115 82 30999
• eleanor.wilson@nottingham.ac.uk

Biography

Eleanor Wilson is a research fellow in the Sue Ryder Care Centre for the Study of Supportive, Palliative and End of Life Care at the University of Nottingham. Her background is in social science with an MSc in Medical Social Anthropology. She has worked as a researcher in the Division of Nursing since 2000. In that time she has worked on a range of projects investigating patient and family experiences of illness, staff roles and service evaluations. Eleanor's work focuses on the provision of care for those affected by neurological conditions. This is linked to her doctoral study exploring the needs of those affected by Huntington's disease and the health care staff who provide their care. Her current project looks at the role nurses take in the decisions to use anticipatory prescriptions at end of life.

Teaching Summary

• Dissertation tutor and input to the MSc in Palliative and End of Life Studies, particularly the qualitative aspects of the Research Proposal module.

Research Summary

Understanding the role of nurses in decisions to use anticipatory prescriptions to manage symptoms and distress in the last days of life: a prospective community based case study using mixed methods… read more

Recent Publications

• WILSON, E and KENNY, R, 2012. Successful Multidisciplinary Team Working: An Evaluation of a Huntington's Disease Service British Journal of Neuroscience Nursing. in press, (In Press.)
• WILSON, E, SEYMOUR, J and AUBEELUCK, A, 2011. Perspectives of staff providing care at the end of life for people with progressive long-term neurological conditions Palliative and Supportive Care. 9(4), 377-385
• AUBEELUCK, A, WILSON, E, STUPPLE, E and , 2011. Obtaining quality of life for Huntington's disease patients and their families British Journal of Neuroscience Nursing. 7(5), 634-638
• WILSON, E, POLLOCK, K and AUBEELUCK, A, 2010. Gaining and maintaining consent when capacity can be an issue: a research study with people with Huntington’s Disease Clinical Ethics. 5(3), 142-147

• View all publications

Current Research

Understanding the role of nurses in decisions to use anticipatory prescriptions to manage symptoms and distress in the last days of life: a prospective community based case study using mixed methods 2011-2013

Funded by Marie Curie

This research is currently taking place in Nottingham and Lancaster to explore the views of community nurses.

PhD work

Exploring the care needs of those affected by Huntington's disease

I am currently undertaking my PhD part-time, starting in October 2006. This focuses on the care needs of those affected by Huntington's Disease and uses a qualitative case study method to generate data with people with HD, their family carers and their key health and social care professionals.

Past Research

Environments for care at end of life (ECEL) 2008-2010

Funded by the King's Fund

The study evaluates an Enhancing the Healing Environment programme provided by the King's Fund. The programme involves 20 sites who are undertaking projects to improve the physical environment where end of life care is delivered. The evaluation aims to explore the impact the renovation projects have on the attitudes to and delivery of care at end of life, the impact on those using the environment and the process of change undertaken by the sites. The evaluation takes an overarching view of all 20 sites and a more in-depth assessment at 6 case study sites.

• WILSON, E and KENNY, R, 2012. Successful Multidisciplinary Team Working: An Evaluation of a Huntington's Disease Service British Journal of Neuroscience Nursing. in press, (In Press.)
• WILSON, E, SEYMOUR, J and AUBEELUCK, A, 2011. Perspectives of staff providing care at the end of life for people with progressive long-term neurological conditions Palliative and Supportive Care. 9(4), 377-385
• AUBEELUCK, A, WILSON, E, STUPPLE, E and , 2011. Obtaining quality of life for Huntington's disease patients and their families British Journal of Neuroscience Nursing. 7(5), 634-638
• WILSON, E, POLLOCK, K and AUBEELUCK, A, 2010. Gaining and maintaining consent when capacity can be an issue: a research study with people with Huntington’s Disease Clinical Ethics. 5(3), 142-147
• WILSON, E., SEYMOUR, J.E. and PERKINS, P., 2010. Working with the Mental Capacity Act: Findings from palliative and specialist neurological care settings. Palliative Medicine. 24(4), 396-402
• POLLOCK, K, MOGHADDAM, N. COX, K, HOWARD, P, WILSON, E, 2010. Exploring patient and carer experiences of receiving information about cancer. A comparison of interview and questionnaire methods of data collection. Health. 15(2), 153-172
• WILSON, E, 2009. Care at the end of life for people affected by Huntington's disease Clinical Genetics. 76(supp1), 3-4
• WILSON, E, 2009. ‘Patients and families’. In: BYRNE J, MCNAMARA P, SEYMOUR J, AND MCCLINTON P, ed., Palliative Care in Neurological Disease: A team approach Radcliffe. pp85-98
• AUBEELUCK, A and WILSON, E, 2008. Huntington's disease. Part 1: essential background and management British Journal of Nursing. 17(3), 146-151
• POLLOCK, K, COX, K, HOWARD, P, WILSON, E and MOGHADDAM, N, 2008. Service user experiences of information delivery after a diagnosis of cancer: a qualitative study Supportive Care in Cancer. 16, 963-973
• WILSON, E, ELKAN, E, SEYMOUR, J and ALMACK, K, 2008. A UK literature review of progressive long-term neurological conditions British Journal of Community Nursing. 13(5), 206-212
• POLLOCK, K, WILSON, E, POROCK, D, COX, K, 2007. Evaluating the impact of a cancer supportive care project in the community: Patient and professional configurations of need. Health & Social Care in the Community. 15(6), 520-529
• ELKAN, R, AVIS, M, COX, K, WILSON, E, PATEL, S, MILLER, S, DEEPAK, N, EDWARDS, C, STANISZEWSKA, S and KAI, J, 2007. The reported views and experiences of cancer service users from minority ethnic groups: a critical review of the literature. European Journal of Cancer Care. 16(2), 109-21
• WILSON, E AND COX, K, 2007. Community palliative care development: Evaluating the role and impact of a General Practitioner with a Special Interest in Palliative Medicine. Palliative Medicine. 21(6), 527-535
• COX, K, WILSON, E, JONES, L, FYFE, 2007. An exploratory, interview study of oncology patients' and health-care staff experiences of discussing resuscitation Psycho-Oncology. 16, 985-993
• WILSON, E, ELKAN, R and COX, K., 2007. Closure for patients at the end of a cancer clinical trial: literature review Journal of Advanced Nursing. 59(5), 445-453
• WILSON, E and SEYMOUR, J, 2007. Exploring the palliative care needs of those affected by progressive long-term neurological conditions Journal of Care Services Management. 12(1), 92-102
• WILSON, E, COX, K, ELKAN, R, 2006. Enhancing Cancer Trial Management: an intervention study of the impact of providing information, trial results and support to patients in phase I and II anti-cancer drug trials at trial conclusion. Clinical Effectiveness in Nursing. 9, 119-132
• COX,K., WILSON,E., HEATH,L., COLLIER,J., JONES,L. and JOHNSTON,I., 2006. Preferences for follow-up after treatment for lung cancer - assessing the nurse-led option Cancer Nursing. 29(3), 176-187
• POROCK, D., POLLOCK, K., WILSON, E. and COX, K., 2006. The Cancer Supportive Care Project Evaluation The University of Nottingham.
• COX, K., WILSON, E., ARTHUR, A., ELKAN, R. and ARMSTRONG, S., 2005. A randomised controlled trial of nurse-managed trial conclusion following early phase cancer trial participation British Journal of Cancer. 93(1), 41-45
• COX, K., AVIS, M., WILSON, E. and ELKAN, R., 2005. An evaluation of the introduction of Clinical Trial Officer roles into the cancer clinical trial setting in the UK European Journal of Cancer Care. 14(5), 448-456
• CAMPBELL, M., WILSON, E. and COX, K., 2005. Vital to County Life
• ELKAN, R., AVIS, M., DEEPAK, N., EDWARDS, C., KAI, J.P., MILLER, S., PATEL, S., STANISZEWSKA, S. and WILSON, E., 2005. Views and Experiences of Cancer Service Users from Black and Minority Ethnic Communities: A Literature Review
• COX, K., WILSON, E., JONES, L. and FYFE, D., 2005. Understanding DNAR Orders: An exploratory study of patients' pamilies and health care staff experiences of being invovled in resuscitation decisions and discussions.
• HEATH, L., COX, K., WILSON, E. and JOHNSTON, I., 2004. The acceptability of nurse led lung cancer follow up Thorax. 59(Supp 2), 19
• COX, K., AVIS, M., WILSON, E. and ELKAN, R., 2004. An evaluation of the introduction of Clinical Trial Officer roles into the cancer clinical trial setting in the UK.
• COX, K. and WILSON, E., 2004. Assessing the acceptability of nurse led lung cancer follow-up.
• COX, K. and WILSON, E., 2004. Enhancing cancer trial management: an intervention study of the impact of providing information and support to patients in phase I and II anti-cancer drug trials at trial conclusion.
• COX, K. and WILSON, E., 2003. Follow-up for people with cancer: nurse-led services and telephone interventions Journal of Advanced Nursing. VOL 43(PART 1), 51-61
• COX, K., CARMICHAEL, J., JAMES, V., WILSON, E., OSBOURN, L., CLAYTON, K., ASIF-SULEMAN, S., NEWCOMBE, K. and WILLIAMSON, T., 2001. Participation in clinical trials: patient experiences European Journal of Cancer. 37(Supplement 6), S392