NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)
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The NCARE group would like to congratulate Yakubu Salifu on his successful PhD viva

 

Dr Yakubu Salifu is a nurse from Ghana. He was funded by his government to undertake his PhD research:  Exploring Home-based Supportive and Palliative Care for men living with Advanced-stage Prostate Cancer in a resource-limited Sub-Saharan African Country (Ghana)

The aim of the research was to explore the experiences of men with advanced prostate cancer, their caregivers, and health care professionals in relation to home-based care. This was a qualitative study.

Findings include:

  1. Caring in a resource-poor setting. Men with cancer and their caregivers spoke about the challenges they encountered in accessing health care and support, and their experience of being overburdened by the costs, gaps/unmet needs in care provision, the challenges of mobilising for resources for care, and some of the support they rely on. Healthcare professionals also indicated the challenges they face such as transport, shortage of staff and medical supplies to support patients at home.
  2.  Family caregiving. Men with advanced prostate cancer and their caregivers recognised the practical and emotional challenges of caring for a loved one at home, managing pain and medications, and making decisions about care unsupported. They also appreciated the role of reciprocity, informal support network of the extended family, and relying on one’s faith as strategies adopted to cope. 
  3. Cultural responses impacting on care: stigma and masculinity. Prostate cancer is stigmatised and this affects not only the person with cancer but their caregivers. Various layers of stigma exist including the stigma of prostate cancer, prostate cancer symptoms, and some palliative treatment options. Prostate cancer also influences the patriarchal position of men in a male-dominated society. The four aspects of masculinity affected are physicality and body image, sexual potency, socio-economic status, and emotional wellbeing.

Conclusion: Prostate cancer causes disruption in the lives of men and their families as they traverse the prostate cancer journey. This study is pioneering in looking at masculinity and stigma together in men with prostate cancer. There is a need for social and health policies and to provide extended professional palliative care closer to the patients at home. Increasing awareness about prostate cancer is critical and provision of ‘how to do’ health education packs to support families.

 

Posted on Tuesday 16th April 2019

NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)

University of Nottingham
School of Health Sciences
Queen's Medical Centre
Nottingham, NG7 2HA


email: kristian.pollock@nottingham.ac.uk