Patient and Public Involvement (PPI)

The perspectives of stroke patients and their carers/family/friends are key to this research. PPI has been embedded throughout the study to ensure maximum impact and value to the research.

Two stroke survivors are co-applicants and have been involved in the development of the study since inception. They are members of the trial management group and have contributed to writing documents, study management, funding has been included as part of the HTA award for all PPI involvement.

A PPI group consisting of stroke patients and carers (including family members and/or friends) has been involved in the development of study documents and the development of the study. Furthermore, the information as to the clinically meaningful difference was sought, inclusion/exclusion criteria and data collection formats have been modified and the plain English summary edited on their advice. The group has met and will continue to meet regularly at key stages to contribute to ongoing discussions and ensure meaningful involvement throughout the research.

The PPI group has been involved in the co-creation and co-analysis of the process evaluation and the development of Health Economic form

Our PPI co-applicants are keen to ensure that the trial materials are appealing and accessible; and will co-design all patient-facing materials. They emphasised that we recognise that at this acute stage in recovery, potential participants are coming to terms with a life-changing event and highlighted the need to ensuring a sensitive approach is always used.

For any queries, please contact the study team at:

FISS@nottingham.ac.uk