The study findings include carer accounts of very different experiences of end of life care, even on the same ward. Some of these were positive, but others were not.

Relatives are already in distress when facing the reality of the patient’s approaching death. However, this is made worse:

  • If they experience the ward as an alien environment.
  • If they are not made to feel welcome.
  • If they are not adequately informed about the patient’s prognosis, care plan or what to expect during the process of dying.
  • When they feel abandoned by staff who do not acknowledge their presence, show interest or offer support.
Watch the video below for Andrew and Susan's story:

Video transcript

What role should family carers play in the care of patients dying in hospital?


By pressing the Delete button below you can remove your stored responses.


By pressing the Reset Data button below you can restart this activity. Importantly all stored responses will be deleted.

Reset Data