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Speaker: Dr Linda Birt (University of East Anglia)
Title: People with dementia doing research: the challenges for participation and collaboration
Date and time: 8th March 2018, 11.30am – 12.30pm
Venue: A Floor, Institute of Mental Health, Triumph Road
Abstract: A diagnosis of dementia often shifts a person’s social status and consequently opportunities to participate in the research process as an autonomous and agentic person can diminish. Access to research studies may be mediated by medical ethics and care relationships which are intended to ‘protect’ the potentially vulnerable person. While there is an increasing recognition of participatory ways in which people with dementia can actively support studies, peer research or co-research with people with dementia is theoretically under-explored as a research process. In co-research people with experience of the condition have the opportunity to work alongside academics in all stages of the research process: co-creating data and results. This presentation draws on data produced through the Promoting Independence in Dementia study (The PRIDE study) in which we aimed to work with people with dementia and carers as co-researchers.
Drawing on results from a literature review, a qualitative study and a research reflective journal, I will discuss the pragmatic and theoretical challenges of undertaking co-research in dementia research, highlighting the questions we need to consider to support ongoing best practice.
All welcome to attend!
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