Eczma Care
University of Nottingham
  

Blog

For those days when twitter is just not enough characters check out the blog, which has updates and more information about the progress of the study.

Latest Blog

August 2023

Eczema Care Online - One Year On...


It’s now been over a year since we first launched the Eczema Care Online website (www.EczemaCareOnline.org.uk). We thought it was time we gave you an update on how things are going.   

The Eczema Care Online website has been accessed by over 20,000 people from 157 countries around the world. This is an amazing achievement, but with millions of people living with eczema in the UK alone, there is clearly a long way to go.

Here are some of the things that people have been saying about Eczema Care Online:

I thought I knew how to look after my child’s eczema, but I learned so many new things from ECO about how to keep eczema under control – things I would have never thought of!

Study participant, parent of a child with eczema

 It was one of the best websites I’ve ever used; it was really easy to use and provided the answers to your specific questions. I didn’t have to read through lots of stuff that wasn’t relevant to me.  

Study participant, young person with eczema

Very helpful resources indeed.  Since it has become available, I have tried to include it in every Advice & Guidance that I do!

Paediatric Dermatologist, UK 

Looked brilliant because you can just send it away to [patients] and say look, this is what it’s all about

General Practitioner, UK 

Our Family Workers regularly signpost families to ECO so hopefully there is a steady stream of families benefiting from the information.

Eczema Outreach Support, UK 


Our two randomised controlled trials showed that Eczema Care Online improved eczema symptoms. It also helped people to cope better with their eczema. You can read the full trial results in the British Medical Journal. Or you might prefer to watch our video (link to video).

Our aim is to make sure that the website is available to everyone with eczema. Ideally, healthcare providers will signpost to the website whenever someone asks about eczema. We would love it if all primary care staff, including GPs, health visitors and pharmacists were aware of Eczema Care Online. We hope they will prescribe it alongside eczema treatments. We’ve made this easy by adding a link to Eczema Care Online within primary care electronic health systems (via the Ardens template for eczema).

We are also delighted that Eczema Care Online is mentioned in key national guidelines such as:

  •     NICE Guidelines for children with eczema (web link)  
  •     Clinical Knowledge Summaries (weblink).  


Key supporters include the British Association of Dermatologist, British Dermatology Nursing Group, Primary Care Dermatology Society, and of course the wonderful National Eczema Society and Eczema Outreach Support charities.   

You can read an article about Eczema Care Online that was published in the National Eczema Society’s Exchange magazine (link to pdf of article).

We need your help.....

Can you help us to spread the word about Eczema Care Online?

When it comes to sharing good news, there is nothing quite like word of mouth.  If you know someone with eczema, please do share.

Website: www.EczemaCareOnline.org.uk  

 

Previous Blogs

July 2022 - Eczema Care Online Toolkits available by Miriam and Ingrid

June 2022 - Cochrane review on the best and safest ways of using topical corticosteroids now published by Steph & Jane

January 2022 - Looking forward to 2022 - an exciting year for the Eczema Care Online Programme by Kim

October 2021 Stakeholder workshops on key messages about the safety and effectiveness of topical corticosteroids by Paul

February 2021 - What are young people's experience of managing eczema by Kate

January 2021 - ECO update by Miriam and Kim

July 2020 - Speaking to children about eczema by Emma

June 2020 - Eczema and covid-19 (part 2) by Miriam and Kim

April 2020 - ECO Study update (part 1) by Miriam and Kim

November 2019 - Patient partnership in an academic research unit by Amina and Carron

October 2019 - Diverging views on eczema treatments - Miriam and Amanda

September 2019 - Trial Management by Julie

June 2019 - Life as a young adult with eczema by Taheeyaa

May 2019 - Eczema, Eczema – read all about it by Daniela and Miriam

December 2018 - Nurses play an important role in the eczema experience by Sandra

September 2018 - Pulling together all the evidence on the safety of topical steroids for eczema by Jo

June 2018 - Finding out about views and experiences of people with eczema for ECO by Miriam and Ingrid

May 2018 - Eco has the potential to be a big deal for patients by Amanda

May 2018 - What is Eczema Care Online? By Miriam and Kim - What is Eczema Care Online?

 

Eczema Care Online

Email: eco@soton.ac.uk



This website presents independent research funded by the National Institute for Health Research Programme Grants for Applied Research Programme (project number RP-PG-0216-20007). The views and opinions expressed on this webpage are those of the authors and do not necessarily reflect those of the NIHR, the National Health Service or the Department of Health & Social Care.