Eleanor Wilson is an Ann McLaren Research Fellow working on a study exploring end of life decision making with patient with Motor Neurone Disease using home mechanical ventilation. The study explore these issues from the perspectives of people with MND and their families: https://nottingham.ac.uk/go/ventmnd
Eleanor's background is in social science with an MSc in Medical Social Anthropology and PhD in Health Studies she is based in the NCARE (Nottingham Centre for the Advancement of Research in supportive, palliative and End of life care) research group. As part of her Fellowship Eleanor is building a body of work around the use of ventilation, decision making and end of life care in the home environment. Eleanor's work focuses on the provision of care for those affected by neurological conditions. This is linked to her doctoral study exploring the needs of those affected by Huntington's disease and the health care staff who provide their care. she has particular expertise in conducting flexible interviews on sensitive topics.
Eleanor has expertise in qualitative research, in particular in engaging those with conditions that might affect their speech, movement or cognitive function.
Skills include: Flexible interviews on sensitive topics, Observations, Case study research, Ethnography, Adaptation of information and consent procedures, Study management
Areas of particular interest: MND, Huntington's disease, Neurological conditions, Long-term conditions, Home Mechanical Ventilation, Medications management, Community nursing, Delivering end of life care in the home, Support for carers, Anticipatory prescribing, End of life care in care homes, role of Home Care Workers, Decision making, Advance care planning, Law and ethics in health care.
Nottingham Research Fellowship Oct 2020-June 2024
Exploring end of life decision making with patients with Motor Neurone Disease (MND) using home mechanical ventilation: The perspectives of people with MND and families (VentMND)
For further information: http://nottingham.ac.uk/go/ventmnd
Freeman, S, Burford, J, England, G, Pollock, K, Wilson, E and Mair, T. Welfare impact of delayed euthanasia decisions in the UK horse population. The Horse Trust, Masters student pump priming award (commenced April 2020).
WILSON, E, CASWELL, G, LATIF, A, ANDERSON, C and FAULL, C, 2020. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. BMC Palliative Care. 19(1), 66
WILSON, E, CASWELL, G, TURNER, N and POLLOCK, K, 2018. Managing medicines for patients dying at home: A review of family caregivers’ experiences Journal of Pain and Symptom Management. 56(6), 962-974
June 2019-Mach 2021 (£160,000) Marie Curie, Exploring death and dying in the UK: Patient, family and public perspectives (EDDUK) (Pollock, Wilson and Caswell)
March 2017-March 2020 NIHR Health Services Delivery and Research Programme (£457,000) Managing medicines for patients with serious illness who are being cared for at home (Pollock, Wilson, Anderson, Avery, Waring, Crosby, Latif, Caswell and Faull)
March 2017-April 2018, LOROS (£2000), LOROS ward leadership project evaluation (Wilson)
May 2014-Sept 2016 Macmillan Cancer Support. Evaluation of Macmillan Specialist Care at Home services (Johnston, Almack, Seymour, Wilson, Patterson and Bird)
Sept 2013-July2014 NIHR Health Services Research programme Care and communication between health professionals and patients affected by severe of chronic illness in the community care setting (Pollock, Seymour, Cox, Avery, Crosby, Finn, Scott)
Oct 2006-May 2013 A delicate equilibrium: living with Huntington's disease. PhD thesis, University of Nottingham (Wilson). This is publicly available online via the Universities ethesis depository: http://etheses.nottingham.ac.uk/3487/
October 2012 Sue Ryder Care (£10,000) An evaluation of specialist neurological services (Aubeeluck, and Wilson)
Sept 2011-2013 Marie Curie cancer Care (£81,300) Understanding the role of nurses in decisions to use anticipatory prescriptions to manage symptoms and distress in the last days of life: a prospective community based case study using mixed methods (Seymour, Wilson, Brown, Payne, Seale, Addington-Hall, Mathers,)
March-June 2010 Department of Health (£38,682) Literature review of bereavement and bereavement services (Arthur, Wilson, James, Stanton, and Seymour)
2008-2010 King's Fund (£50,684). Environments for Care at End of Life: Evaluation of the King's Fund 'Enhancing the Healing Environment Programme. (Seymour, Arthur, Wilson, Forsythe).
2008-2009 Sue Ryder Care (£10,000). Advance care planning and the mental capacity act in specialist neurological and palliative care centres. (Seymour, Wilson, Perkins)
2006-2008 Huntington's Disease Association and Sue Ryder Care Centre for Palliative and End of Life Studies (£74,824). Exploring the palliative care needs of service users with neurological conditions. (Seymour, Wilson, Aubeeluck, Taylor and Mason).
2004-2006 CancerBACUP (£25,141). Evaluating a model of patient information delivery across a cancer network. The CancerBACUP/Mid Trent Information Project 2004-6 (Cox, Wilson)
03/05-09/05 Big Lotteries Fund, (£8,000) An evaluation of the cancer supportive care project in Clifton: the key worker element (Cox, Porrock, Wilson)
2004-2005 Macmillan Cancer Relief (£10,000) Views and experiences of cancer service users from black and minority ethnic communities - A literature review (Cox, Avis, Patel, Elkan, Wilson)
2003-2006 Macmillan Cancer Relief (£16,900). An evaluation of the introduction of a pilot scheme of a General Practitioner in Palliative Medicine in South Lincolnshire (Investigators: Cox, Wilson).
2003-2005 Queens Medical Centre Charitable Trust & Nottingham City Hospital NHS Trust (£12,000). Assessing the acceptability and feasibility of Nurse-led lung cancer follow-up (Cox, Wilson).
2003-2004 Cancer Charitable Trust Fund, City Hospital Nottingham (£5,575) Understanding DNR Orders: An exploratory study of patients' and families experiences of being involved in resuscitation decisions and discussions (Cox, Wilson).
2002-2003 National Cancer Research Network (£10,000). An evaluation of the Introduction of Clinical Trial Officer Roles into the cancer clinical trial setting in the UK (Cox, Avis, Wilson, Elkan)
2000-2003 Cancer Research Campaign, Project Grant (£75,000) An intervention study of the impact of providing information and support to patients in phase I and II anti-cancer drug trials at trial conclusion. (Cox, Wilson)