Eleanor Wilson is a research fellow in the Nottingham Centre for the Advancement of Research in supportive, palliative and End of life care (NCARE). Her background is in social science with an MSc in Medical Social Anthropology and PhD in Health Studies. She has worked on a range of projects investigating patient and family experiences of illness, staff roles and service evaluations.
Eleanor's work focuses on the provision of care for those affected by neurological conditions. This is linked to her doctoral study exploring the needs of those affected by Huntington's disease and the health care staff who provide their care. She is currently involved in the research theme looking at the management of medications in the home environment.
Eleanor has expertise in qualitative research, in particular in engaging those with conditions that might affect their speech, movement or cognitive function.
Skills include: Interviews, Observations, Case study research, Ethnography, Adaptation of information and consent procedures, Study management
Areas of particular interest: Huntington's disease, Neurological conditions, Long-term conditions, Medications management, Community nursing, Delivering end of life care in the home, Support for carers, Anticipatory prescribing, End of life care in care homes,
May 2014-Sept 2016 Macmillan Cancer Support. Evaluation of Macmillan Specialist Care at Home services (Johnston, Almack, Seymour, Wilson, Patterson and Bird)
WILSON, E, MORBEY, H, BROWN, J, PAYNE, S, SEALE, C and SEYMOUR, J, 2015. Administering anticipatory medications in end of life care: A qualitative study of nursing practice in the community and in nursing homes. Palliative Medicine. 29(1),
WILSON, E, SEYMOUR, J, MORBEY, H, PAYNE, S, BROWN, J and SEALE, C, 2014. Anticipatory prescribing in end-of-life care Nursing Times. 16-17
WILSON, E, POLLOCK, K and AUBEELUCK, A, 2014. Providing care services to people affected by Huntington's disease: an overview of the challenges British Journal of Neuroscience Nursing. 10(3), 139-143
WILSON, ELEANOR, AUBEELUCK, AIMEE and POLLOCK, K, 2014. Applying a health care model to Huntington’s disease – the key worker approach British Journal of Neuroscience Nursing. 10(5), 214-218
Sept 2013-July2014 NIHR Health Services Research programme Care and communication between health professionals and patients affected by severe of chronic illness in the community care setting (Pollock, Seymour, Cox, Avery, Crosby, Finn, Scott)
Oct 2006-May 2013 A delicate equilibrium: living with Huntington's disease. PhD thesis, University of Nottingham (Wilson).
This is publicly available online via the Universities ethesis depository: http://etheses.nottingham.ac.uk/3487/
October 2012 Sue Ryder Care (£10,000) An evaluation of specialist neurological services (Aubeeluck, and Wilson)
Sept 2011-2013 Marie Curie cancer Care (£81,300) Understanding the role of nurses in decisions to use anticipatory prescriptions to manage symptoms and distress in the last days of life: a prospective community based case study using mixed methods (Seymour, Wilson, Brown, Payne, Seale, Addington-Hall, Mathers,)
March-June 2010 Department of Health (£38,682) Literature review of bereavement and bereavement services (Arthur, Wilson, James, Stanton, and Seymour)
2008-2010 King's Fund (£50,684). Environments for Care at End of Life: Evaluation of the King's Fund 'Enhancing the Healing Environment Programme. (Seymour, Arthur, Wilson, Forsythe).
2008-2009 Sue Ryder Care (£10,000). Advance care planning and the mental capacity act in specialist neurological and palliative care centres. (Seymour, Wilson, Perkins)
2006-2008 Huntington's Disease Association and Sue Ryder Care Centre for Palliative and End of Life Studies (£74,824). Exploring the palliative care needs of service users with neurological conditions. (Seymour, Wilson, Aubeeluck, Taylor and Mason).
2004-2006 CancerBACUP (£25,141). Evaluating a model of patient information delivery across a cancer network. The CancerBACUP/Mid Trent Information Project 2004-6 (Cox, Wilson)
03/05-09/05 Big Lotteries Fund, (£8,000) An evaluation of the cancer supportive care project in Clifton: the key worker element (Cox, Porrock, Wilson)
2004-2005 Macmillan Cancer Relief (£10,000) Views and experiences of cancer service users from black and minority ethnic communities - A literature review (Cox, Avis, Patel, Elkan, Wilson)
2003-2006 Macmillan Cancer Relief (£16,900). An evaluation of the introduction of a pilot scheme of a General Practitioner in Palliative Medicine in South Lincolnshire (Investigators: Cox, Wilson).
2003-2005 Queens Medical Centre Charitable Trust & Nottingham City Hospital NHS Trust (£12,000). Assessing the acceptability and feasibility of Nurse-led lung cancer follow-up (Cox, Wilson).
2003-2004 Cancer Charitable Trust Fund, City Hospital Nottingham (£5,575) Understanding DNR Orders: An exploratory study of patients' and families experiences of being involved in resuscitation decisions and discussions (Cox, Wilson).
2002-2003 National Cancer Research Network (£10,000). An evaluation of the Introduction of Clinical Trial Officer Roles into the cancer clinical trial setting in the UK (Cox, Avis, Wilson, Elkan)
2000-2003 Cancer Research Campaign, Project Grant (£75,000) An intervention study of the impact of providing information and support to patients in phase I and II anti-cancer drug trials at trial conclusion. (Cox, Wilson)
Jan 2017-June 2019 - (Co-applicant) Pollock, K, Anderson, C, Avery, T, Caswell, A, Crosby, V, Faull, C, Latif, A, Waring, J, Wilson, E Managing Medicines at the end of life for patients being cared for and dying at home, NIHR Health Services and Delivery Research Programme (£464,000)