April 2014 - March 2016
Marie Curie Cancer Care Research Programme
- Dr Richard Harding 1 (PI)
- Dr Jonathan Koffman 1
- Dr Kathryn Almack 2
- Dr Barbara Daveson 1
- Researcher: Dr Katherine Bristowe 1
- Cicely Saunders Institute, Kings College London
- University of Nottingham
This project aims to improve demand for and supply of palliative care for people who identify as lesbian, gay, bisexual and/or trans* (LGB and/or T) and are in the later stages of a life-limiting illness.
Research has shown that people who identify as LGB and/or T, and their significant others, may not receive the care they need when facing a life-limiting illness, despite an increased risk of certain cancers (Harding et al. (2012) Journal of Palliative Medicine).
The ACCESSCare project has been designed to address this inequity through:
- The development and dissemination of evidence-based mass media resources with the LGB and/or T communities to increase the demand for appropriate end-of-life care
- The improvement of supply of appropriate end-of-life care through development of training resources for integration within existing end-of-life care curricula for health care professionals
The project will involve in depth qualitative interviews with people who identify as LGB and/or T and are in the later stages of a life-limiting illness, as well as with bereaved caregivers of trans* people who died a predictable death from a progressive illness or condition.
The findings from the previous literature and the qualitative interviews will be used to shape the mass media resources for the LGB and/or T communities, as well as the training for health care professionals.
Stage of Development
Recruitment for the first phase started August 2014.