NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)

Exploring views about independence and care towards the end of life for people who live alone

Project Duration

1st April 2014 to 30th September 2015

Funder

British Academy / Leverhulme small grant

Project Staff

  • Glenys Caswell (PI) 1
  • Morna O'Connor1

Staff Institutions

  1. The University of Nottingham
 

Aims

To pilot sociological autopsy as a methodology to explore the phenomenon of dying alone at home.

Objectives

1. Improve understanding of circumstances of individuals who live and die alone at home.

2. Engage in critical debate with current conceptions of the ‘good death’.

3. Formulate recommendations for professionals whose work brings them into contact with people who are likely to die alone at home.

Methods

1. Conduct a pilot study to:

a. Test the utility of the sociological autopsy as methodology to explore cases of those individuals who die alone and are later found dead. This will begin with an examination of coroners’ records in 3 cases where individuals have died alone at home. Further data sources will be identified from the records and interviews sought with appropriate professionals, relatives, neighbours and/or friends in order to situate the story told in the records in the wider social context.

b. Test feasibility and acceptability of interview recruitment method by interviewing 5 individuals who live alone and have an increased chance of dying alone at home. Participants will be recruited through a gatekeeper, e.g. hospice discharge team. The acceptability of the interview guide will be explored with participants. Five health professionals will also be interviewed to explore their experience and views.

2. The final stage will be to write a funding application to carry out the full research project.

Stages of Development/Outcomes/Findings 

Data collection has been completed and analysis of the findings is currently underway.

 

 

NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)

University of Nottingham
School of Health Sciences
Queen's Medical Centre
Nottingham, NG7 2HA


email: kristian.pollock@nottingham.ac.uk