NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)

Managing medications for patients with serious illness being cared for and dying at home

This study aims to explore how patients with serious, life limiting and terminal illness, their family care givers and the health care professionals who support them engage collaboratively in managing medicines prescribed for relief of symptoms towards the end of life.

It will provide evidence from a detailed study of barriers, facilitators, information and training needs for the improved support at home of patients with serious, life limiting and terminal illness and their families.




  • Antunes, B., et al., Anticipatory prescribing in community end-of-life care in the UK and Ireland during the COVID-19 pandemic: online survey. BMJ Supportive and Palliative Care, 2020. 10:343–349. 
  • Bowers, B., et al., General Practitioners’ decisions about prescribing anticipatory medications at the end-of-life: a qualitative study. British Journal of General Practice, 2020. 70 (699): e731-e739. DOI:  
  • Bowers, B., K. Pollock, and S. Barclay, Administration of end-of-life drugs by family caregivers during covid-19 pandemic. BMJ, 2020. 369: p. m1615. 
  • Bowers, B., et al., Anticipatory syringe drivers: a step too far. BMJ Supportive and Palliative Care, 2019. 9: p. 149-150.
  • National Institute of Health Research (NIHR) Alert: Terminally ill patients and their families often need more help to manage their medicines.Published on 16 September 2020 doi: 10.3310/alert_41179
  • Latif A; Faull C; Wilson E; Caswell G; Ali A; Anderson C; Pollock K. Managing medicines for patients with palliative care needs being cared for at home: Insights for community pharmacy professionals. Pharmaceutical Journal
  • Pollock K, W. E., Caswell G, Latif A, Caswell A, Avery A, et al. . (2021). First look summary: Managing medicine for patients with serious Illness being cared for at home. NIHR Health Services and Delivery Research.
  • Pollock, K., Wilson, E., Caswell, G., Latif, A., Caswell, A., Avery, A., Anderson, C., Crosby, V., & Faull, C. (2021). Family and health-care professionals managing medicines for patients with serious and terminal illness at home: a qualitative study. 9, 14.
  • Wilson, E., Caswell, G., Latif, A. Anderson, C., Faull C., and Pollock, K. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. BMC Palliat Care 19, 66 (2020).
  • Wilson, E, Caswell, G, Turner, N and Pollock, K (2018) Managing Medicines for Patients Dying at Home: A Review of Family Caregivers' Experiences. Journal of Pain and Symptom Management. Published Online: September 11, 2018 Vol 56(6):962-974 Dec 2018
  • Wilson, E., Caswell, G., & Pollock, K. (2021). The ‘work’ of managing medications when someone is seriously ill and dying at home: A longitudinal qualitative case study of patient and family perspectives’. Palliative Medicine.

NCARE (Nottingham Centre for the Advancement of Research into Supportive, Palliative and End-of-life Care)

University of Nottingham
School of Health Sciences
Queen's Medical Centre
Nottingham, NG7 2HA