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1.4.9 Professional help

Vic’s last few weeks were spent in a state of increasing distrust of the ward staff, since there was never any attempt to open a dialogue from either side. The staff appeared to misinterpret Vic’s silence, and without giving Vic the opportunity to talk, were left having to guess at his wishes.

Li seemed to be able to manage her own treatment in her own way, choosing to combine two systems of medicine. She did, however, have to be assertive with the nursing home staff who were reluct
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1.4.8 Comment on case studies

Vic was not consulted about his needs and the possibility of his death was never discussed. The uncertainty about his religious needs resulted in a staff member having to make a decision on his behalf and hope that it was the right one. An added dimension to the uncertainty about Vic’s wishes was the relationship which he had with his sons, in which there was a lot of unresolved conflict.

Li did not have a choice about her place of death because she was unable to speak, but previously
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1.3.7 Emotional feelings

In Sabom’s study all who reported a near-death experience were asked to describe their emotions during the experience. The predominant picture was one of calm, peace and tranquillity, in marked contrast to the physical pain and suffering felt before or after the event. Some spoke of sadness at seeing the efforts and distress of others trying to bring them back to life, and one woman spoke of being very happy until she remembered she was leaving her children behind. A few referred to a sense
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1.3.6 Sense of death

For almost everyone, quite early in the experience there was a strong feeling that they were dying or had already died, but this wasn’t preceded by a conscious anticipation of the nearness of death. One survivor of a heart attack said the first thing he realised after losing consciousness was that ‘something funny was going on … I realised I was dead … that I had died. [I thought] I don’t know whether the doctor knows it or not, but I know it.’


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1.3.5 Sense of reality

Sabom also found most people emphasised at least once during their interview that the experience was as real as the more ordinary events of life. In this vein a typical comment was, ‘It’s reality. I know for myself that I didn’t experience no fantasy. There was no so-called dream or nothing. These things really happened to me. It happened. I know. I went through it.’ For one man it was ‘realer than here … After that the world seemed like a mockery to real life …’


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1.2.7 Margaret

Margaret was in her thirties when she learnt she had breast cancer. Some three years later, after the removal of the affected breast, she was leading a very busy life working full-time at the Open University, studying part-time for an OU degree and running a family. Fitness activities such as jogging and various sports had become very important in her life. She was also very involved in cancer research fundraising activities. She described the impact of her brush with death in this way:


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1.2.2 How do others find meaning in life?

There are those who share Tolstoy’s view that death is an end rather than a transition, and yet are much more optimistic about life. Hermann Bondi represents the views of many Humanists in the following passage:

As a Humanist I believe in the importance of human linkages, of human interactions, of our lives getting their meaning from our connections with each other. Thus I agree with Donne that anybody’s death
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Introduction

This unit is an adapted extract from the course Death and dying (K260)

This unit will explore how knowledge and beliefs about death and encounters with death affect people’s lives. It will also examine the concept of a ‘good death’ from an individual perspective in order to enhance the quality of dying.


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Learning outcomes

After studying this unit you should be able to:

  • outline how encouraging people to talk about the past can be a way of helping them to manage change in their lives and establish identity in the present;

  • demonstrate an understanding of the basic principles in life story work which could apply at any age or stage of life;

  • appreciate that life story work is as much about dealing with the present and preparing for the future as it is sorting out feelings
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2 A day in the life of a hospital ward

In 1996, we visited Ward 29, one of two gastroenterology wards in the medical unit, and recorded the views of patients and staff. The ward has 24 beds. Its patients were women and men, across a wide age range, suffering from digestive disorders – for example, stomach ulcers, Crohn's disease, ulcerative colitis, cancers of the digestive system or problems with liver function brought on by alcohol abuse. Because it was winter the ward had more elderly people than it would have at other times
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Introduction

This unit considers the type of care offered in hospitals, using Leeds General Hospital as a case study. The unit looks at the people who have roles within the hospital, how they interact with each other and patients and what they consider to be 'care'. The different approaches and contributions to care by doctors and nurses are explored and patients give their perspective on the care they receive.

This material is from our archive and is an adapted extract from Understanding Health
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1.5.1 Agreeing who to be

So far I have focused on one-to-one interactions. Yet ‘defining a scene’ is often a group effort. Goffman says this involves teamwork, with all participants, in effect, agreeing to act and speak within an overall frame of reference. He suggests that it works like a theatrical play in which everyone has taken on a part within the scene. To play your part means setting aside all those aspects of yourself which are not relevant to your role. The scene works only because everyone plays their
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1.4.2 The doctor–patient relationship

However, some care relationships are more tightly defined and more hierarchical, for example a doctor’s relationship with a patient. Within the biomedical model, the doctor’s role is to focus on the patient’s body and its functioning. The patient’s role is to report clearly and accurately on the body’s functions and the feelings it transmits. There is relatively little scope for the patient to influence the definition of this scene. The doctor generally makes the opening moves, whil
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1.3.1 Social interactions

The sociologist Erving Goffman studied how people relate to each other across a wide range of situations. According to him, each of us enters into ‘social interactions’ with an interest in trying to control what goes on. A social interaction is any kind of situation in which people communicate with each other or do things together. After all, much of what we do in life, we do through dealings with other people. We negotiate the routine business of daily life through interactions wi
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Learning outcomes

After studying this unit you should be able to:

  • demonstrate your understanding of the importance of negotiating the meaning of care relationships;

  • identify ways in which people play the roles of ‘carer’ and ‘receiver of care’.


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References

Alzheimer's Disease Society (1996) Information Sheet 1, Alzheimer's Disease Society, Gordon House, 10 Greencoat Place, London SW1P 1PH.
Arias, E.G. (ed.) (1993) The Meaning and Use of Housing, Avebury, Aldershot.
Department of Health (2001) The Children Act Now: Messages from Research, The Stationery Office, London.
Dunlo
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1.3.7 Models of adjustment

Here we have talked about changes of place as having a particular impact on an individual's sense of well-being or self-esteem. Relocation and separation from familiar places just like separation from loved ones can be experienced as a form of loss which can have devastating effects for some people. Some authors have seen changes in self-esteem as the key to understanding how people cope with change. For example, Hopson and Adams (1976) suggest that any transition, whatever triggers it, sets
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1.3.3 Change on a daily basis: shared care for the elderly

In the case of Mr Bright care is shared between his wife and formal carers and changes in the place of care are primarily to give Mrs Bright a break and Mr Bright a change of scene.

Click below to hear an audio clip describing a day in the life of Mr and Mrs Bright.

1.2.3 Place and identity

Home, then, can support your ‘identity’ through the way you ‘personalise’ the space in it with your own belongings – making a statement about who you are. However, if you look back to Activity 1, you can also see other ways identity is supported: ‘I can be myself’. If you say this, it suggests that you don't have to put on an act. You fit ‘naturally’. Home is part of your identity because you are the person who ‘fits’ in that place.

But it is not usually jus
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1.2.2 A place for possessions

Figure 1.1
Home decorating!

One of the ways homes come to reflect something of the individual is through the things within them. This per
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