For this project we asked people impacted by eczema about their experiences of living with the condition explore what aspects of this they think would be important to capture when measuring the long-term management of eczema.
There are currently mixed views on how we should measure long-term management of eczema in clinical trials. This means that at the moment everyone is measuring different things and we can’t easily compare this outcome across trials. The views of people with eczema and carers are needed to help us measure the long-term management of eczema in a way that captures the lived experience of managing eczema as a long-term condition.
We recruited people 16 years or older with eczema that had been diagnosed by a doctor and carers/parents of a child with eczema that had been diagnosed by a doctor.
People were invited to participate in online discussion group where questions were asked about living with eczema.
This was an online study as to allow international engagement.
The study was funded by the British Skin Foundation.
Defining and measuring 'eczema control': an international qualitative study to explore the views of those living with and treating atopic eczema
‘When it goes back to my normal I suppose’: a qualitative study using online focus groups to explore perceptions of ‘control’ among people with eczema and parents of children with eczema in the UK
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