| Project | Description | Funding | Status |
|---|
|
PEARLS (Proactive against reactive therapy for the treatment of lichen sclerosus)
|
Proactive against reactive therapy for the prevention of lichen sclerosus exacerbation and progression of disease: a pragmatic, parallel group randomised controlled trial with embedded economic evaluation and process evaluation |
NIHR Health Technology Assessment |
Due to start March 2023 |
|
Diagnostic criteria for vulval lichen sclerosus
|
A study to investigate which are the most important clinical criteria to diagnose vulval lichen sclerosus |
NIHR Advanced Fellowship |
Ongoing |
|
The patient perspective: treatment for vulval lichen sclerosus and the potential use of laser
|
Patient interview study to gain deeper insight into views around treatment for vulval LS, potential use of laser and taking part in research |
British Society for the Study of Vulval Disease |
Ongoing |
|
CORALS (Core Outcomes for Research in Lichen Sclerosus)
|
Initiative to establish the most important outcomes to measure in future trials of genital lichen sclerosus |
UK DCTN Themed Call award |
Ongoing |
| Laser therapy for lichen sclerosus: a systematic review of the current evidence base |
Systematic review to examine the current evidence for all laser types in the treatment of lichen sclerosus |
UK DCTN fellow project |
Published |
| Laser treatment for Lichen Sclerosus: Professional, Patient and Public Perception |
To investigate the thoughts of patients, the public and health professionals in using laser therapy as a treatment for lichen sclerosus affecting the vulva |
BMedSci student project |
Project completed
Results newsletter
|
| Is urinary incontinence associated with lichen sclerosus in females? A systematic review and cross-sectional study |
Systematic review and cross-sectional study to establish whether urinary incontinence is associated with lichen sclerosus in females |
Joint British Skin Foundation and British Association of Dermatologists funding |
Published
BJD article
|
| James Lind Alliance Lichen Sclerosus Priority Setting Partnership |
To identify and prioritise research questions that are important to people who have lichen sclerosus and those who treat them. |
BSSVD |
Published |
| A Randomised Controlled Trial of Systemic Therapy for Vulval Erosive Lichen Planus (hELP) trial |
A study that evaluated the effectiveness of tablet treatments for moderate or severe vulval erosive lichen planus. |
NIHR Doctoral Research Fellowship |
Published |
| Erosive Lichen Planus: Is systematic treatment better than topical alone? Developing and designing a pilot multi-centre randomised controlled trial. |
This package of research was developed over a 12 month period and it successfully achieved funding through the NIHR Doctoral Research Fellowship scheme. |
NIHR Research Flexibility and Sustainability Funding (FSF |
Published,
paper 1, paper 2 |
| Outcome measures for vulval skin disease - a systematic review of randomised controlled trials |
Systematic review to identify outcome measures used in clinically based randomized controlled trials investigating therapeutic interventions in vulval disease. |
NIHR Doctoral Research Fellowship |
Published |
| Diagnostic Criteria for Erosive Lichen Planus effecting the Vulva: An international electronic-Delphi Consensus Exercise |
A three-stage electronic-Delphi exercise to reach consensus on clinicopathological diagnostic criteria for erosive lichen planus of the vulva (ELPV). |
NIHR Doctoral Research Fellowship |
Published |