Pemphigoid and pemphigus are uncommon blistering skin diseases.
The diseases arise when a person’s own immune system, which serves as the body’s defence system against viruses and harmful bacteria, attacks components of the skin and/or mucous membranes (such as mouth, nose, and eyes). This causes blisters to form, often accompanied by intense itchiness and/or pain. Severe forms of the disease may even be life-threatening.
Unfortunately, current treatment options are limited and often cause severe side effects. In order to improve the care of people with pemphigus and pemphigoid increased awareness and understanding of the diseases as well high-quality research into the management is required.
Informing trial development in blistering diseases - A collection of projects relating to epidemiology, healthcare data, treatment and trial feasibility.
Pemphigus and pemphigoid Priority Setting Partnership (PEM PSP) A study to identify treatment uncertainties important to those affected by this group of conditions.
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