Dementia is a major public health issue for the 21st Century for which there is presently no cure. The UK National Health Service states that in England there are 570,000 people living with dementia, and this number is expected to double over the next 30 years.
The older you get, the more likely you are to develop dementia and it remains a leading cause of dependency and disability among older people. This increasing number of people will lead to an increasing demand for care at home.
To be effective, home care for people with dementia needs to be sensitive to the special problems that they present. However, community based services are not always designed to meet the specific needs of people with dementia and their carers.
Study dates: November 2010 to May 2013
Funders: National Institute for Health Research, School for Social Care Research (NIHR-SSCR)
Principle investigator: Dr Rob Jones
Contact: Anthony Kelly
What were the study aims?
What is a "fidelity index"?
Fidelity denotes how accurate a copy is to its source; how closely a set of procedures are implemented - have they been implemented as they were supposed to have been.
Index denotes a detailed listing of topics, that directs attention to some fact, condition, or guiding principle.
A Fidelity Index measures how closely a service matches the conditions and guiding principles that might be expected from such a service.
What were the study objectives?
The primary study objectives were to:
We wanted to find out the answers to the following:
Who were the participants?
The following organisations took part in the research:
What did the study involve?
There were four phases:
Fidelity Index (Manager)
Electronic Fidelity Index (Manager)
Frequency tables for all research participants
Fidelity index showing fieldwork totals for 31 services
Care worker questionnaire
Client carer questionnaire
Data from questionnaires
Service manager responses to fidelity index
Care worker responses to questionnaire
Client carer responses to questionnaire
Professional responses to questionnaire
This work presents independent research commissioned by the NIHR SSCR. The views expressed are those of the authors and not necessarily those of the NIHR SSCR.
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